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Publications

Misuse of "Usual Care" in Emergency Care Research: A Call for Adapting Rules Governing Exception from Informed Consent (EFIC) Studies.

Cowan E. et al, (2020), The American journal of bioethics : AJOB, 20, 59 - 61

'It's a tough decision': a qualitative study of proxy decision-making for research involving adults who lack capacity to consent in UK.

Shepherd V. et al, (2019), Age and ageing, 48, 903 - 909

Authority and the Future of Consent in Population-Level Biomedical Research.

Sheehan M. et al, (2019), Public health ethics, 12, 225 - 236

Structural Transformation to Attain Responsible BIOSciences (STARBIOS2): Protocol for a Horizon 2020 Funded European Multicenter Project to Promote Responsible Research and Innovation (Preprint)

Colizzi V. et al, (2019), Preprint

Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK.

Shepherd V. et al, (2019), Trials, 20

Patient and public involvement: Two sides of the same coin or different coins altogether?

McCoy MS. et al, (2019), Bioethics, 33, 708 - 715

Should the Decisions of Institutional Review Boards Be Consistent?

Friesen P. et al, (2019), Ethics & human research, 41, 2 - 14

Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales.

Shepherd V. et al, (2019), Trials, 20

Structural Transformation to Attain Responsible BIOSciences (STARBIOS2): Protocol for a Horizon 2020 Funded European Multicenter Project to Promote Responsible Research and Innovation.

Colizzi V. et al, (2019), JMIR research protocols, 8

New Zealand

Sheehan M., (2019), The Palgrave Handbook of Conflict and History Education in the Post-Cold War Era, 403 - 412

Understanding and using patient experiences as evidence in healthcare priority setting.

Rand L. et al, (2019), Cost effectiveness and resource allocation : C/E, 17

Exploring the ethics of global health research priority-setting.

Pratt B. et al, (2018), BMC medical ethics, 19

National Standards for Public Involvement in Research: missing the forest for the trees.

McCoy MS. et al, (2018), Journal of medical ethics, 44, 801 - 804

Ethical understandings of proxy decision making for research involving adults lacking capacity: A systematic review (framework synthesis) of empirical research.

Shepherd V. et al, (2018), AJOB empirical bioethics, 9, 267 - 286

In defence of governance: ethics review and social research.

Sheehan M. et al, (2018), Journal of medical ethics, 44, 710 - 716

Reasonable disagreement and the justification of pre-emptive ethics governance in social research: a response to Hammersley.

Sheehan M. et al, (2018), Journal of medical ethics, 44, 719 - 720

Healthcare professionals' understanding of the legislation governing research involving adults lacking mental capacity in England and Wales: a national survey.

Shepherd V. et al, (2018), Journal of medical ethics, 44, 632 - 637

Standards of practice in empirical bioethics research: towards a consensus.

Ives J. et al, (2018), BMC medical ethics, 19

Moral narcissism and moral complicity in global health and humanitarian aid.

Sheehan M., (2018), Journal of medical ethics, 44, 287 - 288

The Family Context of Assent: Comparison of Child and Parent Perspectives on Familial Decision-Making

Sibley A. et al, (2017), Children & Society

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