Publications

Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations.

Friesen P. et al, (2021), Health expectations : an international journal of public participation in health care and health policy, 24 Suppl 1, 54 - 61

Ethics review of big data research: What should stay and what should be reformed?

Ferretti A. et al, (2021), BMC medical ethics, 22

Ethical Issues in Consent for the Reuse of Data in Health Data Platforms.

McKeown A. et al, (2021), Science and engineering ethics, 27

The ethics of grandfather clauses in healthcare resource allocation.

Wester G. et al, (2021), Bioethics, 35, 151 - 160

Development of a decision support intervention for family members of adults who lack capacity to consent to trials.

Shepherd V. et al, (2021), BMC medical informatics and decision making, 21

'There's more to life than money and health': Family caregivers' views on the role of Power of Attorney in proxy decisions about research participation for people living with dementia.

Shepherd V. et al, (2021), Dementia (London, England), 20, 308 - 325

Decisions on Innovation or Research for Devastating Disease

Andreae MH. et al, (2021), American Journal of Bioethics, 21, 28 - 31

Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.

Erikainen S. et al, (2020), Journal of medical ethics

Tragic choices in intensive care during the COVID-19 pandemic: on fairness, consistency and community.

Newdick C. et al, (2020), Journal of medical ethics, 46, 646 - 651

Constructing authentic decisions: proxy decision making for research involving adults who lack capacity to consent.

Shepherd V. et al, (2020), Journal of medical ethics

'Your country needs you': the ethics of allocating staff to high-risk clinical roles in the management of patients with COVID-19.

Dunn M. et al, (2020), Journal of medical ethics, 46, 436 - 440

Trust, trustworthiness and sharing patient data for research.

Sheehan M. et al, (2020), Journal of medical ethics

Experimental Philosophical Bioethics.

Earp BD. et al, (2020), AJOB empirical bioethics, 11, 30 - 33

Misuse of "Usual Care" in Emergency Care Research: A Call for Adapting Rules Governing Exception from Informed Consent (EFIC) Studies.

Cowan E. et al, (2020), The American journal of bioethics : AJOB, 20, 59 - 61

'It's a tough decision': a qualitative study of proxy decision-making for research involving adults who lack capacity to consent in UK.

Shepherd V. et al, (2019), Age and ageing, 48, 903 - 909

Authority and the Future of Consent in Population-Level Biomedical Research.

Sheehan M. et al, (2019), Public health ethics, 12, 225 - 236

Structural Transformation to Attain Responsible BIOSciences (STARBIOS2): Protocol for a Horizon 2020 Funded European Multicenter Project to Promote Responsible Research and Innovation (Preprint)

Colizzi V. et al, (2019), Preprint

Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK.

Shepherd V. et al, (2019), Trials, 20

Patient and public involvement: Two sides of the same coin or different coins altogether?

McCoy MS. et al, (2019), Bioethics, 33, 708 - 715

Should the Decisions of Institutional Review Boards Be Consistent?

Friesen P. et al, (2019), Ethics & human research, 41, 2 - 14

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Publications