Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations.
Journal article
Friesen P. et al, (2021), Health expectations : an international journal of public participation in health care and health policy, 24 Suppl 1, 54 - 61
Ethics review of big data research: What should stay and what should be reformed?
Journal article
Ferretti A. et al, (2021), BMC medical ethics, 22
Ethical Issues in Consent for the Reuse of Data in Health Data Platforms.
Journal article
McKeown A. et al, (2021), Science and engineering ethics, 27
The ethics of grandfather clauses in healthcare resource allocation.
Journal article
Wester G. et al, (2021), Bioethics, 35, 151 - 160
Development of a decision support intervention for family members of adults who lack capacity to consent to trials.
Journal article
Shepherd V. et al, (2021), BMC medical informatics and decision making, 21
'There's more to life than money and health': Family caregivers' views on the role of Power of Attorney in proxy decisions about research participation for people living with dementia.
Journal article
Shepherd V. et al, (2021), Dementia (London, England), 20, 308 - 325
Decisions on Innovation or Research for Devastating Disease
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Andreae MH. et al, (2021), American Journal of Bioethics, 21, 28 - 31
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.
Journal article
Erikainen S. et al, (2020), Journal of medical ethics
Tragic choices in intensive care during the COVID-19 pandemic: on fairness, consistency and community.
Journal article
Newdick C. et al, (2020), Journal of medical ethics, 46, 646 - 651
Constructing authentic decisions: proxy decision making for research involving adults who lack capacity to consent.
Journal article
Shepherd V. et al, (2020), Journal of medical ethics
'Your country needs you': the ethics of allocating staff to high-risk clinical roles in the management of patients with COVID-19.
Journal article
Dunn M. et al, (2020), Journal of medical ethics, 46, 436 - 440
Trust, trustworthiness and sharing patient data for research.
Journal article
Sheehan M. et al, (2020), Journal of medical ethics
Experimental Philosophical Bioethics.
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Earp BD. et al, (2020), AJOB empirical bioethics, 11, 30 - 33
Misuse of "Usual Care" in Emergency Care Research: A Call for Adapting Rules Governing Exception from Informed Consent (EFIC) Studies.
Journal article
Cowan E. et al, (2020), The American journal of bioethics : AJOB, 20, 59 - 61
'It's a tough decision': a qualitative study of proxy decision-making for research involving adults who lack capacity to consent in UK.
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Shepherd V. et al, (2019), Age and ageing, 48, 903 - 909
Authority and the Future of Consent in Population-Level Biomedical Research.
Journal article
Sheehan M. et al, (2019), Public health ethics, 12, 225 - 236
Structural Transformation to Attain Responsible BIOSciences (STARBIOS2): Protocol for a Horizon 2020 Funded European Multicenter Project to Promote Responsible Research and Innovation (Preprint)
Journal article
Colizzi V. et al, (2019), Preprint
Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK.
Journal article
Shepherd V. et al, (2019), Trials, 20
Patient and public involvement: Two sides of the same coin or different coins altogether?
Journal article
McCoy MS. et al, (2019), Bioethics, 33, 708 - 715
Should the Decisions of Institutional Review Boards Be Consistent?
Journal article
Friesen P. et al, (2019), Ethics & human research, 41, 2 - 14