An integrated health record (IHR) that enables clinical data to be shared at a national level has profound implications for medical research. Data that have been useful primarily within a single clinic will instead be free to move rapidly around a national network infrastructure. This raises challenges for technologists, clinical practice, and for the governance of these data. This article considers one specific issue that is currently poorly understood: how intellectual property (IP) relates to the sharing of medical data for research on large-scale electronic networks. Based on an understanding of current practices, this article presents recommendations for the governance of IP in an integrated health record.

Original publication

DOI

10.1177/1081180X08089318

Type

Journal article

Journal

Health Informatics J

Publication Date

06/2008

Volume

14

Pages

95 - 111

Keywords

Computer Communication Networks, Copyright, Humans, Intellectual Property, Medical Records Systems, Computerized, Ownership, Systems Integration