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Sharing individual-level data from clinical and public health research is increasingly being seen as a core requirement for effective and efficient biomedical research. This article discusses the results of a systematic review and multisite qualitative study of key stakeholders' perspectives on best practices in ethical data sharing in low- and middle-income settings. Our research suggests that for data sharing to be effective and sustainable, multiple social and ethical requirements need to be met. An effective model of data sharing will be one in which considered judgments will need to be made about how best to achieve scientific progress, minimize risks of harm, promote fairness and reciprocity, and build and sustain trust.

Original publication

DOI

10.1177/1556264615594606

Type

Journal article

Journal

Journal of empirical research on human research ethics : jerhre

Publication Date

07/2015

Volume

10

Pages

302 - 313

Addresses

University of Oxford, UK susan.bull@ethox.ox.ac.uk.

Keywords

Humans, Data Collection, Information Dissemination, Cooperative Behavior, Trust, Public Health, Residence Characteristics, Biomedical Research, Developing Countries, Social Responsibility, Research Personnel, Income, Practice Guidelines as Topic