Public reporting guidelines for outbreak data: Enabling accountability for effective outbreak response by developing standards for transparency and uniformity.

Grégoire V., Zhu AW., Brown CM., Brownstein JS., Cardo D., Cumming F., Danila R., Donnelly CA., Duchin JS., Fill MA., Fullerton K., Funk S., George D., Hopkins S., Kraemer MUG., Layton M., Lessler J., Lynfield R., McCaw JM., McPherson TD., Moore Z., Morgan O., Riley S., Rosenfeld R., Samoff E., Schaffner W., Shaffner J., Sturm R., Terashita D., Walke H., Washington RE., Rivers CM.

ObjectivesThere are few standards for what information about an infectious disease outbreak should be reported to the public and when. To address this problem, we undertook a consensus process to develop recommendations for what epidemiological information public health authorities should report to the public during an outbreak.Study designWe conducted a Delphi study following the steps outlined in the ACcurate COnsensus Reporting Document (ACCORD) for health-related activities or research.MethodsWe assembled a steering committee of nine experts representing federal and state public health, academia, and international partners to develop a candidate list of reporting items. We then invited 45 experts, 35 of whom agreed to participate in a Delphi panel. Of those, 25 participated in voting in the first round, 25 in the second round, and 25 in the third round, demonstrating consistent engagement in the consensus-building process. The final stage of the Delphi process consisted of a hybrid consensus meeting to finalize the voting items.ResultsThe Delphi process yielded nine core reporting items representing a minimum standard for public outbreak reporting: numbers of new confirmed cases, new hospital admissions, new deaths, cumulative confirmed cases, cumulative hospital admissions, and cumulative deaths, each reported weekly and at Administrative Level 1 (typically state or province), and stratified by sex, age group, and race/ethnicity.ConclusionsThis minimum reporting standard creates a strong framework for uniform sharing of outbreak information and promotes consistency of data between jurisdictions, enabling effective response by promoting access to information about an unfolding epidemic.

DOI

10.1016/j.puhe.2025.106102

Type

Journal article

Publication Date

2026-02-01T00:00:00+00:00

Volume

251

Addresses

Johns Hopkins Center for Health Security, Johns Hopkins University Bloomberg School of Public Health, USA; Department of Environmental Health and Engineering, Johns Hopkins University Bloomberg School of Public Health, USA.

Keywords

Humans, Disease Notification, Consensus, Public Health, Disease Outbreaks, Social Responsibility, Delphi Technique, Guidelines as Topic

Permalink More information Close